All About Joan, Pt 5

I remember well the last Mother’s Day with my mother. I had come home to Houston to be with her, as per usual, on my day off from the show I was doing in Illinois. It being Mother’s Day, I wanted to bring her a present.

It is odd when you are trying to pick a gift for someone who has been told that they are, in essence, dying. Certain gifts seem ridiculous, and some seem insensitive: a purse or some piece of clothing or jewelry. At this point, my mom didn’t leave the house, or have outside visitors, so such things seemed unimportant and unnecessary.

“Things” in general had long since become less important, unless they could somehow bring joy or add quality to my Mom’s life.

After wracking my brain, I settled for some kind of flowers or plant. I stopped off at a florist on the way to my parents’ house and picked a blue hydrangea plant in a blue and white ceramic bowl. She loved the color blue, I loved hydrangea, and I loved her, so it seemed the best fit under the circumstances. I figured it was at least something pretty to look at.

We had a particularly intense visit.

My mother had just reached the point where she and my father had to admit that they needed a nurse to come in: she could no longer get herself up out of a chair or sit up in bed unassisted. I had been noticing her failing body strength the last few visits.

But it had been a delicate subject to broach with them. As had other such conversations that had become necessary as her disease progressed.

First had been concern that the three steps up from their bedroom sitting area to the bed area had become a danger for her. I had become secretly terrified she’d fall and break her neck. So I very carefully brought it up to my parents, trying to seem casual so as not to belie the quiet hysteria I felt deep inside.

Such conversations with your parents are so surreal: to be both the child and the adult in the situation at once is strange.

They ended up moving the bed down into the bedroom sitting area, which was a great solution until even that was too much for her.

She eventually moved into Ground Zero – the open kitchen living room area. A hospital bed replaced the couch. She was in the center of things there.

Each new shift in her physical condition had required carefully approached conversations. I’d sense a hope in my parents that was a kind of invisible protective veneer surrounding them, one that colored their perspective of what was actually happening. It seemed to make them a beat or two behind in seeing the changes that were occurring.

Intuitively, I knew I had to take care not to puncture it. I had to ever-so-gently lead them to the realizations. They could not be forced upon them, or rushed.

This most recent concession that my mother’s physical freedom had become so altered was a particularly tough one for both of them. This Mother’s Day fell in the final few days of their time on their own in their home before a full-time hospice care person entered the picture.

As was true of our other weekly visits, we mainly spent our time together talking. Being together.

My mother talked of her life on those visits, and asked me about mine. There were times the conversation went to very serious subjects. Intimate information was exchanged. Old wounds were healed. Our relationship returned to what I can only describe as what I imagine to be the pure essential love between an infant and its mother.

And we laughed. A lot. And talked of lighter things. But throughout all of our talks, there was a subtle rhythm to them that I now realize she was orchestrating. Bits and pieces of those talks, that seemed so casual at times, come back to me as my life progresses. It turns out, she had been implanting motherly wisdoms all along. Mothering me until the very end.

And while I felt our beautiful closeness at this particular visit, I also felt a distance, too. She was moving through an internal process that was singular and private: it was something that neither my father nor I could be a part of.

When I left, I said what I had taken to saying every time: I love you. You know that, right? You hang in there and I’ll see you next week, OK? She hugged me and gave my cheek a little pat. I hated leaving her. It was always hard.

This particular time, for some reason I have never since been able to fathom, I wasn’t particularly afraid I wouldn’t see her again. I let my guard down for a moment. It wasn’t in the forefront of my mind that it might be my last time to see her.

I don’t know why I dropped that awareness. I’ve replayed that last goodbye over in my mind a hundred times. Berating myself for not having said more profound things. The truth was, we’d already said the truly crucial things we needed to say to each other, and for that I am truly grateful. I don’t know what it is I think I could have said at that last goodbye. I just know it still comes back to circle my mind at times. I guess it is all a part of the way the mind deals with grief, those senseless replays and circles.

The next time I visited my parents’ house, the hydrangea was still there. But my Mom was gone forever.

All About Joan, Pt 4

I never saw my mother as more beautiful then when she was dying. I know that’s strange to say, but it is the truth.

As a little kid, I thought she was gorgeous. I’d pore over old black and white photos of her and her twin sister in high school. She looked like a movie star to me.

She was always a pretty lady, though she herself could never own her own beauty. She’d brush off compliments like they were flies on the rim of her iced tea glass. (Remember sun tea?! She got on that bandwagon big time when that hit the ‘burbs.) But during my middle childhood, she stopped putting much time into her looks.

I learned from an early age that being a female in Houston meant a heavy investment in one’s appearance. I developed an intense concern over how I looked, especially my weight, and constantly compared myself to other girls. So I remember wondering why she didn’t seem to care much about how she looked. Now I realize she was probably just tired from taking care of three kids and a husband. (And maybe depressed, but that’s not for me to diagnose, right?)

Once I was out of the house and off to college (the last of her three children,) she started to give more attention to her self, treating herself to nice clothes and wearing makeup. It being the eighties, she especially loved shoulder pads (yikes, remember those?) I think she thought they made her hips seem smaller. She was always self-conscious about her weight.

Throughout my early adulthood, she thrived. She became very involved in a charity organization, eventually holding several offices. I loved seeing her stretch her wings. She was a smart lady and loved people, and they loved her. The Empty Nest was a terrific departure point for her life. She and my Dad had a great time after we were all grown and gone. Until she got sick, of course.

Cancer does something oddly beautiful to some people. It’s as if it strips away all excess of the ego’s physical manifestation down to the spirit-bone. What remains is pure essence. And her essence was simply beautiful.

She had dwindled down to a size that was next to nothing, which of course she teased that she’d have loved if only it didn’t come with the other consequences. Her hair had been lost to the chemo fight, so she had taken to wearing little soft cotton caps. Just in the last months of her life, her hair started to grow back, the lightest dusting of silver-white. Against her porcelain skin, and the bone structure that showed through in full force without any extra softness to shape her face, she was stunning. She had taken to wearing a navy kaftan-style robe of the softest cotton. To me, she again looked like a Hollywood movie star from the Golden Age. She was just missing a gold turban.

I still have one of those little caps she had taken to wearing at the end. I keep it along with one of the hundreds of Beanie Babies that she had collected. She was an avid collector of many things: antique cut glass, Brownware, Fiesta ware, to name but a few (and I do mean but a few.)

She loved decorating the house for all holidays, including Presidents Day and graduations. Much to my father’s chagrin, she had a whole room dedicated to these decorations as well as part of the attic: there were drawers filled with easter eggs and bunnies, a wardrobe filled with Santas, a closet filled with turkeys, ghosts, and black cats and such…you get the idea.

And the Beanie Babies. Oh, the multitudes of Beanie Babies. When my brother’s two beautiful children were born, she began collecting them with a fervor, planning to save them for the children that they would have one day. She became an E-bay specialist, hunting down the hard-to-find ones with the skills of an bounty hunter on the tail of a high-paying felon.

My father ended up donating all those Beanie Babies to the children’s hospital that my mother’s charity supported. But I chose one to keep as a sort of talisman – a little pony, that I keep along with her little turquoise hat.

For the first two years after she died, they traveled everywhere with me. On the tours, they were the first thing I unpacked in the hotel room. Once home again, they were on my bedside table, the first thing I would see when woke.

I needed them in a way that is beyond logic.

After my Mom died, it was as if a giant invisible hand had turned the kaleidoscope of my life, shifting the pieces so that they settled in a new pattern, one I didn’t recognize. I felt adrift, and it was a terrifying sensation.

That little Beanie Baby and her cap were touchstones as I found my way in the New World that held no Mother. Maybe they also helped me feel connected to her loss as the rest of the world around me continued on its way, as it must. Physical proof that she had existed, and that I loved her.

Today they sit on a shelf in my office, part of my small collection of muses, totems that bring me strength and support. They still carry the beautiful spirit that was my mother, and I am so grateful for them.

Pt. 5 to come.

All About Joan, Pt 2

Bird plane

As Mother’s Day approaches, I cannot help but think back to this time 9 years ago. I was in Illinois, doing a musical, finally living my dream.

I was also living a nightmare.

My mother was dying.

I was flying back each week on my off days to Texas to spend precious hours with her. This was not an uncomplicated process. The city I was in was fairly small. Though it had what they called an “International” airport (Hah!), I had to fly to Atlanta to get a connecting flight that would take me to Houston.

I’d fly out on the earliest possible flight on Monday morning, get to Houston around 12:30 PM or so, grab my carry-on, race off the plane and out of the terminal, catch the shuttle to get to the rental car place, get a rental car and drive the 40 minutes across town to my parents’ house. I could usually be in front of my Mom by 3 PM. I’d leave the earliest flight possible the next morning and do the same in reverse to get back just in time to go to the theatre for our first show of the week on Tuesday night. It was a lot of travel, but God, was it worth it.

Though my spirit and body was being fueled by every possible ounce of hope my heart could drum up, I still knew on some level that I had a limited amount of time left with my Mom. After all, she had lung cancer (this after having survived colon cancer) and had been through two rounds of radiation and two rounds of chemo only to be told that there was nothing else to be done. (Such is the way with that bastard, cancer.)

So any delay or problem with either flight heading to Houston was an agonizing torment.

It.Was.My.Worst.Fear.

There were more than a few times there were issues on those crucial flights to Houston. I recall most particularly one flight where the Atlanta-Houston flight was delayed. Then, after finally boarding, we were told that there was some issue with the plane – we had to get off again and await another. Oh, the rage and the desperation I felt!

I marched off that plane, demanding answers from Customer Service, operating in my Survival Mode – a steely cold exterior that surrounds a high-level swirling hysterical interior:

I had to get to Houston ASAP. What was the issue? How could they do this? What were they going to do to solve the problem any faster? What was their f’ing problem?

I don’t remember the reason they gave. They were not especially receptive, and in retrospect I understand why. My Survival Mode comes off as bitchy hysteria. I get it now. But then, it felt as if the whole world was just simply cruel.

After walking away in a mix of shocked shame and guilt at having gone into bitch mode publicly (shame and guilt at such out loud behavior being the response genetically engineered by my “good girl” Southern and Protestant-ly tinged upbringing), I burst into silent, hot-red fury tears.

I did eventually get to Houston that day. But I still want back those two or so hours that Air Trans cheated my Mom and me out of.

If there were issues on either flight heading back to Illinois, that was a different kind of hell. When you are a recovering perfectionist such as I, and a Betty-By-The-Book type of personality, it is simply not an option to not do a show.

Just.Not.An.Option.

Once, leaving Houston, I got to the airport to find that the weather in Atlanta was totally screwed up. No flights in or out there. I ended up buying a ticket on Delta leaving out of another Houston airport. I cried in silent outrage in a taxi to the other airport, flew to Chicago, rented a car and drove at unlawful speeds the hour and half drive back to the city to get to the theatre by call. I made it, too.

Hell hath no fury like a daughter grieved.

 

Part 3 to come.